Volume 121

This study explored the connection between disease uncertainty and family/mental resilience in 180 guardians of children with IBD. Guardians completed the Mishel Illness Uncertainty Scale (MUIS-FM), Family Resilience Index Scale (FHI), and Connor-Davidson Mental Resilience Scale (CD-RISC). Results showed high disease uncertainty, with top scores for uncertainty (84.3%), lack of information (76.9%), unpredictability (74.0%), and complexity (68.2%). Guardians' mental resilience significantly linked to family resilience. Multiple regression analysis revealed family resilience's challenge dimension and mental resilience's tenacity and strength as key predictors of disease uncertainty. The study concludes that guardians of children with IBD face significant disease uncertainty, tied to lower family and mental resilience. Interventions should focus on enhancing family support and psychological adaptability to improve their monitoring experience, ultimately aiding in better management of their children's condition and overall well-being. This highlights the importance of a holistic approach in supporting these families, addressing not only medical needs but also the psychological and emotional aspects of caring for a child with a chronic illness.

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